Find a cure. end als.
our mission
The Joseph Kiley Foundation was founded in memory of Joe Kiley, who was diagnosed with Bulbar ALS in September 2018. For two years, his family and friends supported him as he courageously fought the disease until he passed away. After his passing, we continue his fight. Meet Joe →
Our annual Walk to End ALS has raised over $60,000 in the last three years. With these funds, we’ve been able to make considerable contributions to the Healey Center for ALS at Massachusetts General Hospital in support of their search for a cure for ALS.
our IMPACT
Our proceeds are donated to the Healey Center for ALS, a key player in finding a cure and treating people with ALS.With the greater than $50,000 we’ve donated to the Healey Center to date, the Healey Center has made remarkable progress towards finding a cure. They’ve collaborated with industry partners to demonstrate the effectiveness of a novel drug that recently received FDA approval, were awarded an NIH grant to run a national program offering investigational products under an Expanded Access Protocol program for people with ALS who are unable to participate in formal trials, and they continue their work through the game-changing HEALEY ALS Platform Trial which helps to fast-track new therapies.
“Thank you so much for your recent gift to support ALS research and care here at the Sean M. Healey & AMG Center for ALS at Mass General, through your annual Joseph Kiley Foundation Walk to End ALS. Congratulations on your most successful year yet – we are so grateful!
Our growing community fuels our determination and inspires us every day. With your generosity, we are working boldly and tirelessly to overcome this disease. Thank you for supporting our work, which we are confident will bring us to the finish line.”
“At the Healey Center for ALS, we are on a quest to discover life-saving therapies for the approximately 500,000 people worldwide who are affected by amyotrophic lateral sclerosis (ALS).
We are a diverse group of researchers, clinicians, project managers and information technologists at Massachusetts General Hospital, working with collaborators around the globe to find novel therapies for people with ALS. Under the leadership of Merit Cudkowicz, MD, MSc, Chief of Neurology, and a Science Advisory Council (SAC) of international experts, we are in a tireless pursuit of a cure. Our large, multidisciplinary ALS clinic team is equally passionately devoted to providing innovative care that combines new tools, such as telemedicine, with age-old solutions, such as house calls, to provide the best treatments available to help people with ALS today.”