ALS takes away the freedom to walk, to talk, and to breathe.

find a cure. end als.

If you’d rather donate with a check, please make the check payable to “Joseph Kiley Foundation.” You can mail your check to 8 Whalen Drive, Lincoln RI, 02865.

How does your donation help end als?

The Joseph Kiley Foundation's proceeds are donated to the Healey Center for ALS at Massachusetts General Hospital, a key player in finding a cure and treating people with ALS.

We chose the Healey Center after spending some time considering the organizations that were both part of Joe’s battle with ALS and were on the cutting-edge of ALS research in pursuit of finding a cure. We feel strongly that no person or family should have to experience the devastating impact of ALS.

Joe participated in countless clinical trials at the Healey Center while he was sick. The funds we raise for the Healey Center helps them to continue this research in their search for a cure.

In 2021, we donated almost $15,000 to the Healey Center. Those funds contributed directly to the HEALEY ALS Platform Trial. Though this trial did not yield a definitive cure for ALS, it represents a breakthrough in efficient evaluation of ALS drugs.

“This regimen demonstrated the efficiency of the innovative platform design in evaluating drugs for ALS,” said Jinsy Andrews, MD, MSc, verdiperstat regimen lead, assistant professor of neurology, and Director of Neuromuscular Clinical Trials at Columbia University Irving Medical Center, NY.

“We are at an exciting time for therapeutic development, and we continue to strive for future successes for the ALS community,” said Suma Babu, MD, MPH, verdiperstat regimen co-lead and assistant professor of neurology at MGH/Harvard Medical School. 

Learn more about the HEALEY ALS Platform Trial →

about the Healey center for als at mgh

“At the Healey Center for ALS, we are on a quest to discover life-saving therapies for the approximately 500,000 people worldwide who are affected by amyotrophic lateral sclerosis (ALS).

We are a diverse group of researchers, clinicians, project managers and information technologists at Massachusetts General Hospital, working with collaborators around the globe to find novel therapies for people with ALS. Under the leadership of Merit Cudkowicz, MD, MSc, Chief of Neurology, and a Science Advisory Council (SAC) of international experts, we are in a tireless pursuit of a cure. Our large, multidisciplinary ALS clinic team is equally passionately devoted to providing innovative care that combines new tools, such as telemedicine, with age-old solutions, such as house calls, to provide the best treatments available to help people with ALS today.”